Uncategorized

When things get out of control how do you get it back?

There are loooaaads of articles online with tips for better blood glucose control or how to “take control of your diabetes”.

However, this one I came across on Diabetes Health was very well written and should be easy to adapt into your own life. I have edited to make it more relevant for Irish people and the text that is highlighted are pieces that I feel are important to consider when you are trying to regain control of your diabetes but that is also a matter of personal opinion.

Eight Tips for Super Blood Sugar Control

By Clay Wirestone (with some editing by Gráinne Flynn) May 20, 2011

You're heard the doctors. You've read the articles. You know all about tight control.

Ever since the results from the Diabetes Control and Complications Trial were published in 1993, everyone has known that reducing A1C levels staves off complications and keeps us healthy longer. We know this. And we've listened.

But many type 1s--and even type 2s who aggressively manage their illness--suspect that they could do better. And just a bit of searching around the web or browsing in your local bookstore will prove you right.

For me, it was the work of Dr. Richard Bernstein. "Diabetics are entitled to the same, normal blood sugars that nondiabetics enjoy," Bernstein wrote in the preface to his book Dr. Bernstein's Diabetes Solution. He's stated that viewpoint repeatedly in interviews and articles.

And who could argue with it? Some disagree with Bernstein's advice on how to get that level of control--an extremely low-carb diet figures into his plan--but his basic notion tantalizes. Are normal blood sugars possible? Can people with diabetes transform good blood sugar control into great blood sugar control?

I think we can. (Is feidir linn!!) And what's more, it's not that complicated. However, it does require that you, the person with diabetes, make a commitment to yourself to take action. Here are eight suggestions.

Have a goal.

The American Diabetes Association says that people with diabetes should aim for an A1C--a three-month average blood glucose level--below 7%. (From the 1st July 2011, the HbA1c will be measured in units called mmol/mol (pronounced “millimoles per mole”), rather than as a %. The HbA1c target of 7% will equate to 53 mmol/mol.) The American Association of Clinical Endocrinologists advises an A1C of 6.5% (45 mmol) or under. Most doctors would be pleased with either number.

But what's your goal? If your A1C is 8% or 9%, hitting 7% is a worthwhile aim. However, if you've managed to achieve an A1C near 7%, perhaps you could try for a lower number. Talk to your doctor and diabetes educator and see if they think you can safely aim for even tighter control.

Whatever you're aiming for, having that target number in mind will help. That's where you want to go. That's what you want to do. And that goal will help motivate you in the days and weeks ahead.

A note of warning: Don't aim for the impossible right away. If your A1C is quite high, don't immediately try for the lowest possible number. Talk to your doctor and set a reasonable goal. Then meet it. Then set another goal.

Check your blood sugar. A lot.

No piece of advice could be more obvious, but it's easily overlooked in the hustle and bustle of daily life. If you don't know what your blood sugar is, you can't hope to keep it at a nondiabetic level.

According to the National Institutes of Health, which funded the Diabetes Control and Complications Trial, it was once standard practice to check blood sugar a single time each day. That landmark study raised the standard to four.

But four checks a day, while better than one, can miss a lot. If you want tighter control, try six or eight checks a day. That's right: Take your blood sugar every two or three hours when you're awake, and definitely check overnight. You might be surprised to learn where your numbers go.

This can be a costly prospect for some people. You can only do what you can afford. But almost everyone can try the extra checks for a few days or a couple of weeks, and that information alone will be helpful. You'll learn how your body reacts to different kinds of food. You'll find out how long it takes your body to absorb insulin.

This is your baseline information. This is the stuff you have to know. The best technology and the most extensive education don't make the slightest bit of difference if you don't know what your blood sugars are most times of the day.

You also might want to consider a continuous glucose monitor. This device gives you a constantly updated blood glucose trend line and can alert you if your numbers rise too high or fall too low.

Carry glucose tablets. Everywhere.

Lows are a real challenge when trying to maintain near-normal blood sugars for any considerable length of time. Think about it this way: A problematic low of 2.5 is just 2.7mmols away from a great blood sugar of 5mmols. But it's 10mmols away from the high blood sugar of 13mmols. If you hate the way low blood sugars make your feel, it might seem more comfortable to stay in the high range. But that high range increases your risk of serious diabetic complications.

Glucose tablets can help solve this vexing problem. Have a low blood sugar? Pop three of four of them, wait a couple of minutes, and be on your way. Have them available at all times, in all the places that you might need them--at home, in the car, and at work.

The government's Centers for Disease Control and Prevention puts it simply: "Always carry some type of carbohydrate sugar food or drink with you." The CDC also advises wearing a medical alert bracelet and carrying a card in your wallet saying that you have diabetes.

For years, I didn't believe in glucose tablets. Why not use candy, I wondered. Or juice? They were both so much tastier than the tablets. But that's the problem. Who eats just three pieces of candy? Who drinks just a few ounces of OJ? It's too easy to over-correct and send your blood sugar sky high.

Stick with glucose tablets. They're tasty enough to be palatable, but bland enough that you won't be tempted to sneak one when your stomach rumbles.

Get coaching. Now.

Find a diabetes educator (diabetes nurse specialist or dietician) or nutritionist. Go to his or her office and learn.

Perhaps you've had diabetes for a long time and think you know everything you need to know. Perhaps you don't want someone in his 20s or 30s telling you how to manage your disease. Perhaps you think you get along just fine on your own.

If you think any of these things, you really do need to see the educator. Because it's easy for veteran patients to lie to themselves--to say that certain high blood sugars "don't count" or that they're not responsible when bad things happen.

An educator sees right through that. He or she won't discipline you, exactly, but you will need to talk openly and honestly about your disease and how it's going. And your educator will then arm you with knowledge and advice.

Boston's Joslin Diabetes Center actually recommends that people with diabetes go through the education process every year or two, making sure they keep up to date with the latest research and their own goals.

You will leave motivated and ready to look at your disease in a different way. And for those looking to take control to the next level, this motivation is invaluable.

For people more recently diagnosed, educators serve a different role. They can help you understand how the disease works and smooth out your ups and downs. Getting good advice at the start can keep you from making mistakes later.

If you have access to courses like DAFNE or BERGER which are provided by some diabetes clinics then avail of them.

Consider a medical device.

I've already touched on continuous glucose monitors. But it's also important to talk about insulin pumps. Both of these devices can remake your routine for the better. A consistent flow of fast-acting insulin from a pump can more accurately reflect the way a pancreas works. And the constant monitoring available from a CGM gives you nearly real-time feedback.

Neither device works miracles on its own. Nothing about the devices changes the basic nature of diabetes or the challenges of controlling the disease. People on insulin pumps can have poor control. So can people with CGMs.

But the education provided with the devices can be invaluable. And the mere act of closely looking after the disease pays off. It's important to commit to the treatment, learn all you can about it, and give it a chance.

Diabetes educators and medical device companies can be great sources of information if you're considering taking this step. Don't hesitate to ask them for advice and information.

In Ireland, both of these devices can be difficult to get but not impossible. If you are interested in giving the insulin pump or the CGM a try, find someone in your area who already has them for tips on how you get one too. There are 4-5 Type 1 supports groups established in Ireland, where you can find out more about pumps and CGM’s.

Don't just count carbs. Limit them.

Not all experts will agree with this point, but it's one that has worked for me.

The standard for diabetic treatment these days is counting carbohydrates in food. That is, your insulin shot should cover the amount of sugar in your food (most starches, like those in bread, break down into sugar). What that means is that you can eat most meats, cheeses, and green vegetables without affecting your blood sugar that much.

If you want more consistent blood sugars, it only makes sense that you would not only know how many carbs you ate so you could give yourself insulin to cover them, but that you would also limit those carbs. If you ate fewer of them, you'd need less insulin, and your blood sugar wouldn't seesaw so much.

I won't say how drastically you should limit those carbs. Different people react to these plans differently, and not everyone can handle restricting such a core part of the diet. It's up to you and your doctor or nutritionist.

What I would urge is that you do some reading. Not just the books by folks like Dr. Bernstein or science journalist Gary Taubes (both of whom advocate very low-carb diets), but also books and websites from those touting more moderate approaches (like the South Beach or Mediterranean diets). Or books on the Glycemic Index.

You already plan your meals to one extent or another. It only makes sense that you pick an approach that feels right to you.

Take responsibility.

I don't want to write this, and you don't want to hear it. But it's the most important point I can make, and it's the one that any person with diabetes must take to heart.

This is your job. This is your life.

Minnesota's Mayo Clinic puts this item on top of its list of "10 ways to prevent diabetes complications." You have to take responsibility, the clinic says, and you have to make the long-term commitment that such responsibility requires.

Ultimately, you can blame no one else for your health or your decisions. Diabetes is a disease that depends on the choices that we make, day in and day out. The decisions often seem small and unimportant. But over time, they accumulate and mark the progress of the disease.

Do we stay healthy, monitoring our blood sugars and food intake, consulting with our healthcare professionals? Or do we let these healthy behaviors slide, with the understanding that we'll always have time to fix it later?

We don't have time. We have to address our health now.

That doesn't mean we panic, and it doesn't mean that we can't ever have a chocolate bar again. But it does mean that we must take real responsibility for ourselves.

Ultimately, if you take responsibility for your disease, the other seven tips here should follow naturally. They're all about taking a commonsense approach to a challenging situation and improving it bit by bit and day by day.

You won't be perfect. But you don't have to be. You just have to be better than you were yesterday.

*These tips are not intended to replace your healthcare's professional advice. Ask them for their opinion, prior to making any changes to your current therapy.

Read the Labels- they've changed!


The health conscious people of this country have been calling for unhealthy products especially those in the category of junk food to be reduced for years so when I watched “The Consumer Show” on RTE 1 on May 10th I really didn’t get upset about how the manufacturers were not giving me the value for money that I was used to.

The show featured a segment on called “Shrinking Products” and highlighted the fact that food manufacturers were reducing the size of their products but not the price. Instead I’m thinking “OMG, how is this affecting my carbohydrate intake?”

I tend to just read the label one time especially if it’s one of those little fun size treats. I have a little notebook where make note of what the label says and how much carbohydrate is in my normal portion. This way I don’t have to do the “sums” every time I have it. I know I’m still a paper gal and don’t have an iphone or similar gadget.

Now I have to recheck all my figures. So far, I’ve come across the funsize snickers bar which has reduced in size from 20grams to 18grams. I know that this only amounts to a 1 gram different in the carbohydrate content per bar. But what are the changes to the regular size bars? I assume that they don’t tell you on the pack how much they have reduced that bar by.

I don’t mind that the manufacturers did this where junk food is concerned I just wish I’d known about it sooner and that I didn’t have to do all the “sums” again.

Hypos! Bite me!

I couldn't find a Little Miss Grumble, so let's pretend I'm Mr. Grumble.

Hypos, short for hypoglycaemia, happen when your blood sugar levels drop below a certain number and your body and brain have difficulty functioning because of the lack of fuel (sugar). My symptoms usually start with a racing heart and the “shakes”. They are the bane of live for people with type 1 diabetes.

I have 18 years of experience in hypos and I have found that the ones that happen shortly after a meal, where I have overestimated how much insulin to take, are the most difficult ones to deal with. These are the ones that force you to stop in your tracks.

I had one of these hypos the other day. I was going about my afternoon chores; folding laundry. I know very mundane. I felt it coming on so I got up and had a little something. I went back to my laundry because it’s not very taxing physically and usually I can continue whatever I’m doing with my hypos. But on this occasion, there was no sign of my symptoms going away, so I decided to test and see what exactly I was dealing with. My blood sugar level was 3.1mmols; this was after a double treatment and my symptoms were getting worse; the sweating kicked in. When the sweats kicks in its time to stop what you’re doing and tackle.

I had injected insulin with my lunch less than two hours before, so the insulin was just peaking.

So I sat in the big comfy armchair surrounded by laundry with a cup of coffee and a little something-something (not the correct treatment for a hypo but did the job just the same;-) but thinking how much nicer this treat….ment would be if I could have finished the laundry first.

Children with Diabetes Deserve a Better Service.

Last year, I became a Diabetes Advocate with Diabetes Action. Huh!

OK, I’ll back track a little.

Diabetes Action is a group who is lobbying both the government and the HSE to improve health services for people with diabetes. They work by enlisting the support of people like me, who have diabetes, to log onto their website; www.diabetesaction.ie and with a few clicks send a prepared email to our local TD’s and Senators.

When the TD’s receive multiple copies of these letters they are prompted to raise the issue in the Dail. In the meantime, Diabetes Action sends letters to all of the national and regional newspapers in the hope that they will publish our stories and bring diabetes into the mind of the general population. As a local advocate I would contact the local media providing them with local statistics and fact relating to the campaign and encourage people to support the campaign locally.

The combination of the efforts of people with diabetes, Diabetes Action and the TD’s, strongly encourages the policy makers to implement the proposals put forward by Diabetes Action and improve the Diabetes Health service.

“If the correct policies are implemented, we can dramatically improve the health of people with diabetes and save hundreds of millions of Euros in funding over the next 10 years”

So now you know how it works let me tell you a little about the current campaign which targets the services for Children & Teens with Diabetes.

The following is the press statement from Diabetes Action 4th May 2011

Children & adolescents unable to access diabetes innovations.

Diabetes Action, an advocacy group for improved diabetes health services, says that hundreds of children and adolescents with diabetes can’t access advances in care such as insulin pumps because local paediatric diabetes teams in hospitals around Ireland are under resourced.

“New treatments that control blood sugar and insulin levels are available, but patients need to work with a specialist diabetes nurse and dietician to access this care and paediatric diabetes teams outside of Dublin rarely have the resources to offer these new treatments” she says.

This often leads families to seek a referral to one of the three Dublin hospitals offering intensive treatments like insulin pumps, requiring time off school, off work and causing a separation from the care provided by the local diabetes service team.

“Dublin hospitals are inundated with referrals of children and adolescents with diabetes from the rest of Ireland, our services are under constant pressure. There is need for national reorganisation to provide the latest treatments in more hospitals” says Dr. Colm Costigan, Clinical Director for the 3 Dublin paediatric hospitals and former chairperson of the Expert Advisory Group on diabetes.

To tackle this, Diabetes Action is seeking the reorganisation of existing paediatric diabetes services into 8 regional networks, with the Dublin network acting as a tertiary hub of excellence.

“Services would continue to be delivered at existing hospitals” according to Prof. Hoey “but we’re asking for each network outside Dublin to be staffed by just one additional diabetes nurse specialist and one dietician to support future access to new treatments for diabetes across Ireland”.

The cost of this reorganisation is €750,000 (for 7 nurses and 7 dieticians) but international studies have shown that improved control of diabetes in children and adolescents can lessen the development of costly complications in adulthood by as much as 76%.

“At present 50% of children and adolescents with diabetes develop some form of long term diabetes complication by the time they reach adulthood; these complications are extremely costly to manage. We can dramatically improve health outcomes and quality of life with a very modest investment and a reorganisation of services” says Prof. Hoey

How do you give your support?

Diabetes Action could not have made this simpler.

Log onto the website , follow the prompts that bring you to a prepared email with local information. Add your name, address and email to the document and click “preview” if you would like to add your own comments, and then click “send”.

If you want to do more you can spread the word to as many people who are affected by diabetes as possible encouraging them to support the campaign. This means Grandparents, Aunts, Uncles, Friends, etc.

These families with diabetes need your support!

Where are the Irish Diabetes Role Models?

Nick Jonas

Halle Berry & Nick Jonas have been used as Diabetes Role Models some many times that I’m kinda tired of it. I don’t mind Nick Jonas so much because he’s doing his bit as a public figure for Diabetes Advocacy but as an almost 40 year old woman I can’t relate to him. As for Halle Berry, well, ever since that whole debacle about how she weaned herself off insulin while pregnant, her credibility is in the toilet.

  

Yes, there are many, many more celebrities with Type 1 diabetes but these are the two that are most commonly used.

  

Wouldn’t it be nice to have people with Type 1 Diabetes closer to home to aspire too? I just want someone famous who is Irish and who is the complete opposite of what the public perception is of diabetes. An image I can show people who give me their pitiful face when they discover I have Diabetes that it’s not a life of pain and misery.

Surely, amoung the 20,000 Irish people with Type 1 Diabetes there are a few celebrities who would speak up on our behalf?

 

Are they hiding? Why would they hide? Should I be hiding too?

 
This is what we do have and I suppose it will do for the time being.

American Spokespeople on Diabetes Awareness

  • Nick Jonas, pop star
  • Miss America 1999, Nicole Johnson
  • Mary Tyler Moore, actress
  • Bret Michaels, lead singer of the rock band Poison
  • Sharon Stone, actress

 

UK Spokespeople on Diabetes Awareness

  • Steve Redgrave, Olympic rower
  • Philip Schofield (mother & brother with Type 1)
  • Lucy Davis from “The Office”

Irish Spokespeople on Diabetes Awareness who we appreciate but have Type 2
  • Gerald Kean
  • Karl Spain
  • Ian Dempsey

 Irish Public Figures who have Type 1 Diabetes.  
  • Mary Banotti, former MEP
  • Pat Carey TD from Kerry
  • Catherine Brady, world champion kickboxer
  • Kenneth Sweeney, former senior county footballer; Sligo